My journey to better health

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Re: My journey to better health

Post by Sue Short on Sun Jul 23, 2017 10:56 am


For Congress to do anything, it means that have to get their heads out of their collective backsides. I know it's frightening but there is nothing you can do about it.
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Re: My journey to better health

Post by fiffur on Sun Jul 23, 2017 3:44 pm

98 for me first thing in the morning after 12 hours without food is a tad high. I'm usually right around 84-86. Remember, I'm pre-diabetic and trying not to get worse.

I was 98 pre-pizza in a bowl last night with no food all day long. I should've been bottoming out but nooooooo.......
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Re: My journey to better health

Post by fiffur on Mon Jul 24, 2017 11:57 pm

Called the hospital to ask how fast we can get me in for the consult and surgery. By the time they got done transferring me here and there the department I needed was closed.

Then I was told that as of Sept. 3rd they will no longer take my medical coverage. Whipped out an email asking they do this asap and why. Any bets?

Congress is set to vote to take away my coverage this week...so I'm screwed either way with a ticking time bomb in my brain. It could be defused IF I had the coverage or money. What grandpa left me isn't nearly enough even if I maxed out my credit card too and filed for bankruptcy afterwards.

Anyone know how to do a crowdfunding?
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Re: My journey to better health

Post by fiffur on Fri Jul 28, 2017 1:01 pm

More good news, bad news:

Good news: I go in for embolization for the thing in my head next Friday. Hope it works.

Bad news: If it doesn't work I might not have enough time to get my head opened up, and I might not get the hemangioma done in time either, before the hospital refuses my medical coverage. They suggested changing companies but there are none I am allowed to change to so I'm screwed.

Will have to call my insurance company and see if there are any other hospitals big enough to be equipped and have surgeons good enough to do the job....it could be my only hope. I was told by the hospital this stuff could easily be $500,000 to $1,000,000. pale affraid
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Re: My journey to better health

Post by fiffur on Thu Aug 03, 2017 12:40 pm

No big hospitals that will take my medical coverage after the end of the month. Surgery tomorrow, will know right away if it worked. If ambiguous results recheck in two weeks with second embolism immediately if needed. If that doesn't work then we'll talk about opening up my head. This doc seems gung ho to push for continued care. The managed care office person I spoke with seemed swayed by my case (I gave them a full description of what I've been through so far and what's still needed to be done) so I might have changed their minds about denying me that.

The fistula is about 2 inches behind my right ear and about 3 inches worth of blood vessel long. He's going to use a type of surgical superglue to close it completely off. I'm actually to be kept in the neurosurgery ICU afterwards!
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Re: My journey to better health

Post by fiffur on Mon Aug 07, 2017 12:39 pm

In pre-op they told me I had to have a catheter, my first....my BP and pulse shot up at least 20 points.

When I woke up after surgery they told me they didn't get it all. Ct-angio on the 22nd to see if I'm in the 25% that it fills in the rest of its' way on it's own. Otherwise I have to go through this all over again to finish the job.

I woke up covered in wires with tubes all over and blood catheters in several places. Urine catheter turned out to be kinked so my bladder was so full it was backing up into my kidneys. I begged to have it out so I could 'go pee like a normal person'. The nurse who removed it said I was empty and I said I beg to differ and as she got rid of the bag I went into the bathroom. Over 800cc worth so I was right. They pumped me so full of saline trying to raise my blood pressure I was in that bathroom every 1 1/2 hours overflowing their measuring device. NO sleep at all....I tried but there was so much noise and they kept coming in for this and that, and blood too. BP monitor went off just as I was drifting off to sleep, 101/45, 62 pulse. They had it se t too high despite my telling them I've had a 90/50 and was conscious at the time so I know it drops a bit more when I'm asleep. Food was good but getting meds was a pain. 5 hours to get an imitrex for my migraine, wouldn't let me take my meds from home so I didn't get half of them at all. Eye drop schedule thrown off. Next time I take my own meds on time and to hell with their rules.

I am covered with bruises, my groin is sore (they had to cut into muscle this time to access the artery) so getting up and sitting down hurts.

On top of that, moms and my medicine cabinets were searched by the bugman since we were not home to keep an eye on him and nobody from the office did either. I WILL be having a talk with the manager when he gets back in the office later this week. I will be putting a chain and padlock on that cabinet of mine. I feel violated...
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Re: My journey to better health

Post by bpaquet on Mon Aug 07, 2017 7:37 pm

Ugh. Hospitals are so not fun.

Payback for the bug man... Put your meds in a lock box and leave a box of condoms in the medicine cabinet for him. Razz
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Re: My journey to better health

Post by Sue Short on Mon Aug 07, 2017 8:05 pm


Love that idea.
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Re: My journey to better health

Post by fiffur on Tue Aug 08, 2017 12:17 am

My mom put marbles in hers and little pieces of paper in all the doors. The above the toilet storage tower was searched in her place. I've figured out how to put a padlock on my cabinet without any permanent changes, so not in lease violation.
Readmitted for more surgery on the 22nd so won't hear from me for a while. Poor Bij will have to be at the vets again for who knows how many days. :-( I hate leaving him there, he got depressed and didn't eat much at all. He's eating like a horse now and is practically velcrocat at times.
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Re: My journey to better health

Post by Sue Short on Tue Aug 08, 2017 11:47 am


I know you do but it's in everyone's best interest.
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Re: My journey to better health

Post by fiffur on Tue Aug 08, 2017 1:16 pm

Next time he'll know for sure where he's going and it will be harder to get him in the carrier. I just hope he understands that we WILL come get him as soon as we can!
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Re: My journey to better health

Post by bpaquet on Tue Aug 08, 2017 8:36 pm

Bring some of your clothing or a pillowcase you haven't washed for him. It will smell like you and maybe keep him from getting too depressed.
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Re: My journey to better health

Post by fiffur on Sun Aug 13, 2017 2:34 pm

We did that last time, still didn't stop him from missing us.
I'm hoping and praying I'm in the 25% that I won't need more embolization surgery so he won't have to stay but one night.
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Re: My journey to better health

Post by fiffur on Thu Aug 17, 2017 8:54 pm

I just got a letter from my crapsurance company: my entire hospital stay including the embolization surgery---denied due to be an 'elective surgery'. I am now over a million dollars in debt unless the doctors and hospital can convince them this was NOT elective surgery!

To say I am depressed is understating the case. Seems the government is determined to kill me one way or the other before I reach another birthday.
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Re: My journey to better health

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