the big c finally caught up with me

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Re: the big c finally caught up with me

Post by jeanebellini on Fri Jan 04, 2013 1:15 am

no BC...they announced that mike was going to be touring with them around the time i was in the hospital the first time...i knew i couldn't even THINK of wasting money on a concert (nor on that 'con' that is just down the road here march 1 (which was originally a davy memorial get together and we were all lead to believe that the money would go to his horses...we've later found out its giong right into a couple people's pockets)..then it became a monkees con...but now its 90% 70s sit com people and folks unrelated to the monkees altogether. the tickets for that con for about 15 hrs over three days are more than what i pay for NYCC for all 4 days...can't do it.

its a good thing i didn't put money out for any concert cuz i was in the hospital the entire time they were here both in NY and NJ so i wouldn't have been able to go if i wanted. (i also was afraid of being in that big crowd of screaming old women jumping around thinking they were teenagers ...and not be able to see the show or hear the music). i really would rather see someone like Mike at a place like BBKIngs which is a good size and has tables etc so you can see and hear the person on stage and really enjoy things. AND the tickets there are under $50...and if you work it right you might get a comp ticket. (i've never paid to see the Blue Meanies there;) )
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Re: the big c finally caught up with me

Post by jeanebellini on Sun Jan 06, 2013 2:35 am

quick addition...first i have 4 cousins, all sister left...pretty much everyone else died in the past year. don't know if i got into that here or not. well. i got a message on FB from one of my cousins that her sister was rushed to the emergency and ICU and isn't expected to make it through the night..or at the most the next 24 hrs.
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Re: the big c finally caught up with me

Post by Sue Short on Sun Jan 06, 2013 12:31 pm



Jeane, that's awful news.
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Re: the big c finally caught up with me

Post by Fire Flower on Sun Jan 06, 2013 2:11 pm

I am so sorry, Jeane. Crying or Very sad
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Re: the big c finally caught up with me

Post by fiffur on Mon Jan 07, 2013 1:37 pm

Oh Jeane, I am so sorry about your cousin. Sad
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Re: the big c finally caught up with me

Post by lovekitties on Mon Jan 07, 2013 2:05 pm

sorry about your cousin, Jeane
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Re: the big c finally caught up with me

Post by jeanebellini on Wed Jan 09, 2013 6:16 pm

haven't heard anyting since i got the message she just had like a day left. So either she's still keepin on or my psycho sister hasn't heard it and decided to scream it at me.

i got an odd message on my phone this mornig (don't know when it was left and they never called here or called back so i don't know that it is). didn't tell me anything except to call back and the phone #. can get messages here (it pulls a lot of power from the battery to do it but i do it a couple times a week to check) but i still can't call. I really wish i could get a ride to the hospital i keep being put in so i can go to whatever office you see for the charity care.
though if i wait til the end of the month my finances will be a lot lower. doing on disability cuts the checks at least in half (another thing.l swear i saw something with the name of the place where the disability stuff comes from come up on the tv but they didn't answer the phone and i haven't gotten an email nor a message on my phone about it. if i don't hear anyting i don't know if i should 1) not worry about it cuz it could have been something else or 2) email them and see if they need me to clarify anything. (though i don't know how good i could be cuz i filled out the form as much as i could).
also the money in the bank will be much lower cuz i have to pay off credit cards.

tomorrow i go to a liver specialist...new guy...and see what he has to say. the onocologist called this morning to see how things were going and he sounds like he thinks i might be able to get the surgery in a couple weeks. it would be easier for me to just get it done and not go back to work for a month and then have to leave against for a couple months due to the surgery.
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Re: the big c finally caught up with me

Post by Sue Short on Wed Jan 09, 2013 7:35 pm



((((((HUGS, LOVE AND PRAYERS))))
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Re: the big c finally caught up with me

Post by bpaquet on Wed Jan 09, 2013 11:45 pm

<<>>
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Re: the big c finally caught up with me

Post by fiffur on Thu Jan 10, 2013 1:13 pm

(((((((((((((((((((((HUGS & PRAYERS))))))))))))))))))) Please let us know what the new liver guy says. Been thinking of you......
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Re: the big c finally caught up with me

Post by jeanebellini on Thu Jan 10, 2013 8:22 pm

getting up before dawn ( i think..i haven't seen dawn in a long time) to get more blood work done. hopefully in a week or less i'll know surgery or not..but its really looking like surgery.
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Re: the big c finally caught up with me

Post by lovekitties on Fri Jan 11, 2013 12:49 pm

You know our thoughts and hoos are with you, Jeane
{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{{GOOD LUCK VIBES}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}
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Re: the big c finally caught up with me

Post by fiffur on Fri Jan 11, 2013 1:33 pm

We will be praying for you here Jeane and keeping you in our thoughts. Even my mom asked how you were doing.
(((((((((((((((((((((STRONG GOOD LUCK VIBES))))))))))))))))))))))))
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Re: the big c finally caught up with me

Post by jeanebellini on Sun Jan 13, 2013 4:06 am

well i think Monday i've got to get up at a decide time (for some reason i can't sleep and when i do finally get to sleep its like 6:00am..no matter WHEN i try to get to sleep..i could go to bed at midnight and i wouldn;'t be asleep til dawn..then i wake up around 2:00 sometimes almost 3:00 in the afternoon!!!)and call the onocologist and see what's up. the new liver specialist ordered the blood work and then said he'd call him so i wanted to make sure that was all done.
looks like there will be surgery but that it have to get more fluid drained like they did before and will have to have special IVs before during and after the surgery. also they have to really watch me even after the surgery so i have no idea how long i'll be in there. onocologist said could be 1 day or if comp;lications set in a week. i think it wil be more than one day.
I need to get this place boxed up so nobody has to 'clean' it while i'm gone and make sure bills are all paid up etc...also need to get some new sheets and a big plastic table clothe (i NEED to go to the $1 store cuz i think they've got them)for the bed. Franny's been peeing on the bed at least once a week and i don't want to come home and have to sleep on stink. i had a bunc (and i mean like 4 at least) Clean Sheets that i'd gotten at the store over the years when they were on sale,coupons etc...well stupid jeannie gave them to the people upstairs cuz they took Ms Puff up there and now i need one and there's nothing so i'm putting out money again. that's why i'm trying to get one for $1. (though i KNOW have two around here somewhere one should still be in the package but who knows WHERE they put that and the other was ont he floor and suddenly disappeared so that probably got thrown away one day while i was at work or somethign...as long as its not their money they just throw things out so i have to replace them).
gawd i hate this life.
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Re: the big c finally caught up with me

Post by Sue Short on Sun Jan 13, 2013 11:32 pm



Thanks for the update. If you can give me a call or have Joe give me a call
with anything I can help you with.
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Re: the big c finally caught up with me

Post by lovekitties on Mon Jan 14, 2013 9:36 am

good luck Jeane, and please keep us informed

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Re: the big c finally caught up with me

Post by jeanebellini on Tue Jan 15, 2013 3:02 am

didn't talk to the doc cuz he wasn't there when i called and he called here before i got home (I did a lot of running around today....got quite a bit done and tonight i sat and joy or joys made payments on everything that's come in this month).
i got home at 5:00 but wasn't told til after 5:30 that he had called so i couldn't call back. 5:00 i might have been able to catch him but i don't think after 5:30 i'd have any luck. so either he'll call early in the morning or i'll have to use the phone upstairs and call.
hopefully soon we'll know what's going on.
also have to get some papers copied and sent off for something else..trying to keep everything straight in my head that i have to do tomorrow now.
on top of it all i'm trying to get things put away etc so when the times comes i wont' have to worry again. Just sort of chipping away at things but its better than just letting stuff in piles fall over!
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Re: the big c finally caught up with me

Post by lovekitties on Tue Jan 15, 2013 12:52 pm

thanks for the update Jeane
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Re: the big c finally caught up with me

Post by fiffur on Tue Jan 15, 2013 2:04 pm

Yes, thanks for the update. You sure are keeping busy! Hopefully all this advance preparation will make for a very smooth recovery period with little to no stress about home. Please let us know if you're going in for surgery and when, so we can all pray for you. (((((((((good luck vibes))))))))))
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Re: the big c finally caught up with me

Post by jeanebellini on Wed Jan 16, 2013 3:02 am

STILL didn't get to talk to the doc.they called this morning and the folks upstairs claimed the came down and called me but i woudln't get up. i'm a very light sleeper so if they had only come down ito the room and not call from the stairs i woulda heard them. (i keep the fan and the tv on at night otherwise they keep me awake with the talking and screaming and dog barking etc).
supposedly the cancer doc says i don't have to make an appointment with him until i'm ready for the surgery (i figure it will be when i go into the hospital). BUT i have no idea abot going into the hospital. SO i'm going to try to talk to the new doc and see what is going on.
on top of all that i have to figure a way to get to the surgeon i haven't been able to get ahold of to get a note saying i have been out and am supposed to go back to work on the 2nd of Feb IF i don't The company will say i've abandonded my job and i won't have a freakin job!!!
ANd if they're going to do the surgery at the start of Feb i will need another note from either the cancer doc or the new liver doc.
won't go into other paperwork i FINALLY got printed up and have to send out in the morning. (the computer went out and just came back on..i've got to get in and print out the address so i can write the envelope up).
Such a screwed up life...i keep askin God why i couldn't just have something simple and not something that keeps knockin' me out every couple months.Hell,if it would have fixed everytring i would live on carrots and hard boiled eggs if i had to!
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Re: the big c finally caught up with me

Post by fiffur on Thu Jan 17, 2013 1:10 pm

*****hoping and praying Jeane got ahold of that doc on the phone*****
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Re: the big c finally caught up with me

Post by jeanebellini on Sun Jan 20, 2013 4:07 am

welp all things being well a week from today i'll be waiting for the call from the hospital that they have bed for me and heading up to Hackensack. I go in on Sun, MOn i get tests and stuff done (i know they have to drain more fluid off me and give me some of this stuff i had the first time i was in there..albumin or something its called..it sounds like and actually is that same stuff that is in eggs). then the surgery is around 8;30 am on tues.
i've done some cleaning and putting things away down here. getting my TARDIS tote bag (a friend sent me for christmas which is gonna come in handy)ready with stuff i always want but never have with me whenever i've been in before..like the right yarn and needles to make my hats etc...a book, slippers, clean underwear, dental floss..i always want to floss and there never is any!).
i want to see if i can wash one of my big stuffies to take with me..i know it sounds stupid but i always miss that. my arms are always full of ivs and after i have surgery its nice to have something to put over my middle so i can rest my arm there.

okay enough rambling just wanted to keep you guys posted.
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Re: the big c finally caught up with me

Post by Sue Short on Sun Jan 20, 2013 4:33 pm



Taking a stuffie with you is not stupid. You know we have your back the best we can.
Anyway, we appreciate the update.
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Re: the big c finally caught up with me

Post by Suzzzz on Sun Jan 20, 2013 8:18 pm

Of course it's not stupid! Comforting and practical, that's what I call it. Hope your knowing we're all thinking about you will be comforting, too. Love you, sweetie. Do keep keeping us posted. I love you
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Re: the big c finally caught up with me

Post by bpaquet on Sun Jan 20, 2013 9:23 pm

It sounds like perfect sense to me. Stuffies are wonderful companions. You can rest your arm on it while you're awake and put it over your head while you try to sleep. Hospitals are the most noisy places. Smile
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Re: the big c finally caught up with me

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