the big c finally caught up with me

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the big c finally caught up with me

Post by jeanebellini on Wed Sep 26, 2012 9:06 pm

i'll probably only be able to get pieces of this out in here...its just long and complicated to get in a place all at once.
but 1) i finally found out why the gastro doc was putting off doing the endoscopy (discount health plan not paying doctor just paying part of their little bit of the procedure)
2) am going to have to pay out of pocket for the doctor so i can have this done, they are trying to get things set up (was supposed to call them at 4:00today to find out when (i know where cuz it will be at the same hospital i was in before)but the phone was being used so i haven't been able to find out.
3) a week ago today i an a hyseroscopy
4) yesterday the results came back and they told me i have uterine cancer.
5)have to contact a specialist to make an appointment to see him and he will then talk with the gyno doc to find out what they are going to do
6) i know they will be doing a hysterecomy and removing some lymph nodes but after that don't know..think they will have to figure it out once they have the stuff removed and see if its spread or not. the gyno says it appears to only be in the lining, that its in early stages and that it hasn't spread.
7) i have to gather things together and get a new ID and then get to all the places i can to try to get some help cuz the bills keep piling up and i don't even want to think what the cancer treatment will cost.

trying to keep my head busy...making kitty toys to donate to this garden center across the turnpike (went there a couple weeks ago to get something and found they had a big jar of egg shaped stuffed toys donated to sell for a recue group and told them i'd make some of my jingle eggs and bing them down to sell for the rescue).still making hats but waiting for people who have ordered them to get the checks to me. (If i sell abotu 25 hats i should have enough to pay the out of pocket for the doctor to do the endoscopy).
and writing and making my comic pages and pictures over at FB. anyone who is over there will see that stuff..i know some of it is stupid but i need to keep my head busy.
and trying to figure out what i can eat and feel okay...and tring to figure out why i'm getting dizzy lately.
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Re: the big c finally caught up with me

Post by Sue Short on Wed Sep 26, 2012 9:44 pm



STUNNED
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Re: the big c finally caught up with me

Post by lovekitties on Thu Sep 27, 2012 12:15 pm

Oh, Jeane. I'm so sorry to hear about the diagnosis. I will be praying that they have caught it in the early stages and there has not been any spreading.
{{{{{{{{{{{{{{{{{{{{{{{{HEALING VIBES}}}}}}}}}}}}}}}}}}}}}}}}}}}
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Re: the big c finally caught up with me

Post by Suzzzz on Thu Sep 27, 2012 8:27 pm

Jeane, you know our hearts and prayers are with you. ((((((((HUG))))))))
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Re: the big c finally caught up with me

Post by gbste on Thu Sep 27, 2012 10:02 pm

Jeane, I hope so much that everything starts to go your way soon.
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Re: the big c finally caught up with me

Post by fiffur on Fri Sep 28, 2012 12:42 pm

OMG Jeane, I am so stunned! I am so sorry about the diagnosis, and I really hope and pray it's stage 1 and they get it all out in the end.

If I read things right, you had a uterine biopsy with a hysterectomy scheduled for next week. I am really hoping and praying everything starts falling into place: that the surgery goes smoothly without any complications, the endoscopy doesn't show anything unusual to worry about, they find a treatment for the liver or a transplant, and that funding for all this somehow appears. It will sort itself out in time. Has the patient services coordinator been able to help with any of this? As for the dizziness: has your blood pressure been checked? Or is it low blood sugar from not being able to eat much?

Don't worry about the money.....your job right now is to rest up so you stay strong, and to heal. (((((((((HUGS))))))))) and {{{{{{{{{{{{STRONG HEALING VIBES}}}}}}}}}}}}}}}}}
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Re: the big c finally caught up with me

Post by ARNIgal on Tue Oct 02, 2012 8:39 pm

WOW...! affraid Sad Take care! We love you!
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Re: the big c finally caught up with me

Post by jeanebellini on Tue Oct 02, 2012 11:51 pm

found out today they can't do any surgery until my liver improves because a failing liver compromises your immune system. found out some interesting things today...my hernia is also enlarged veins from all the pressure from the fluid that was in me.
they also found something suspcious on my skin in an area where there's never been no sunshine...and took a biopsy of that. gawd, this part i haven't told anyone..but they put a shot in to numb it and it didn't take. the guy did the thing he had to do and i felt it. he didn't mean for it to hurt but it was just..gawd!
this next week is NYCC and, God and Fates and Fancies willing, i will be there and get to see and do some things. the week after that i have the endoscopy. and i tell ya i'm scared to death cuz every time they do something to me they find cancer in a different place and liver cancer..well, you might as well just start measuring for that coffin lids cuz they're not going to give a transplant to someone with cancer in two places.
the week after that i have another appointment with this doctor. its a very nice place....probably the fanciest place i've ever been that i wasn't singing at!
so things are still up in the air like a juggler with 12 balls going at once...
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Re: the big c finally caught up with me

Post by fiffur on Wed Oct 03, 2012 11:59 am

OhGoodLord Jeane................I don't blame you one bit for being scared. I'm scared for you too. ((((((((((((((((((((((HUGE HUG)))))))))))))))))))))))
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Re: the big c finally caught up with me

Post by lovekitties on Wed Oct 03, 2012 12:26 pm

still sending those {{{{{{{{{{{{{{{{{{{{HEALING VIBES}}}}}}}}}}}}}}}}}}]] Jeane. If the power of positive thinking we are all sending you is a drug you will be cured and healthy soon.
The liver is resiliant, if it's not too compromised by the cirrosis, and they do find some cancer they may be able to operate to take the cancer out.
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Re: the big c finally caught up with me

Post by fiffur on Wed Oct 03, 2012 12:32 pm

I sure hope that's the case here Lovekitties. Did you know the liver is the only organ of the body besides skin that can regrow itself? That's why living donor liver transplants are even possible. You can take out 60% of it and the 40% that's left will regrow back to 100% size within a year.

I wonder if they can do some chemo to keep the cancer at bay, prevent it from spreading, until the liver recovers enough for surgery to be possible. Who knows, chemo might even shrink the cancer to make it easier to get it all out.
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Re: the big c finally caught up with me

Post by ARNIgal on Wed Oct 03, 2012 3:53 pm

Have you had any advice or help from the American Cancer Society or similar organization? Question
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Re: the big c finally caught up with me

Post by fiffur on Thu Oct 04, 2012 12:07 pm

Good idea Arni! I'm sure the ACS would have some very good suggestions and help. Never hurts to ask, after all nothing ventured nothing gained.

How are you feeling today Jeane?
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Thinking of you...

Post by MichelleB on Sun Oct 07, 2012 2:33 pm

{{{{{{{{{{{{{{{{{{{{{{{{{{{{HEALINGVIBESHEALINGVIBESHEALINGVIBES}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}

So sad to hear this news.....you're in my prayers.

Hope that you're feeling as OK as possible; I know it'll be different every day. I pray for many more better days.

I also hope the checks are coming in for those hats! If you are up to making more, I'd be thrilled to buy one and you wouldn't have to wait for my check. Wink

Remember you're NEVER alone.

Michelle


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Re: the big c finally caught up with me

Post by fiffur on Wed Oct 10, 2012 12:49 pm

Just wondering how Jeane was holding up...........has anyone heard from her? I emailed but go no reply. I'm so worried..............
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Re: the big c finally caught up with me

Post by Sue Short on Wed Oct 10, 2012 4:42 pm



She seems to be okay and is planning on going to something in NYC
next weekend.
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Re: the big c finally caught up with me

Post by fiffur on Fri Oct 12, 2012 12:08 pm

Good to hear that....hope her medical issues get better soon. I miss her in here.
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Re: the big c finally caught up with me

Post by lovekitties on Mon Oct 15, 2012 1:04 pm

I saw jeane on Sunday at patrick's panel at comic con.
She's actually looking very good. She's due for an endoscopy soon.
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Re: the big c finally caught up with me

Post by Sue Short on Mon Oct 15, 2012 2:10 pm



Thank you for letting us know LK. I'd forgotten that you were also going to
the con.
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Re: the big c finally caught up with me

Post by fiffur on Tue Oct 16, 2012 12:09 pm

I'm glad she's doing okay, I'm hoping for a good outcome for her despite everything so far. May the endoscopy show NOTHING wrong. **praying up a storm**
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Glad to hear this

Post by MichelleB on Fri Oct 19, 2012 7:59 pm

Good to know she's out and doing things she enjoys...good thoughts going that way....

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Re: the big c finally caught up with me

Post by Sue Short on Fri Oct 19, 2012 8:33 pm



Michelle, welcome back. Where have you been hiding.
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Re: the big c finally caught up with me

Post by jeanebellini on Wed Oct 24, 2012 6:48 pm

sorry but i've been so extremely wiped out and exhausted the past week and a half that i can barely hold my head up. i'm off work for four days in a row again (they're still cutting my hours to the bone..three days a week again even though we're in 'seasonal' hours) so i'm trying to get some sleep. haven't slept in yet but i tend to sleep the afternoon away.
tonight i did some research and discoverd that enlarged spleen and liver cirrhosis can not only cause extreme exhaustion but depression,mood and memory changes. was reading in a mag at the cancer center yesterday that cancer (and the treatment of it) can effect your accutity and memory as well.
i don't even want to think what hell is goin to be in 'season' this week....they've been screaming at me for years that i'm 'too slow' already. i'm gonna be even slower now.
with the endoscopy and talking to the cancer doc ...my liver isn't quite as bad as it was.. but its not in shape enough to have the surgery done yet. i have a lot of fluid still in me (and its starting to feel like there's more..not in pain but feeling pukey and in a lot of pain the past few days)and they can't operate til its gone. before the 6th of Nov i have two doctor's appointments, a ct scan (like i had before) and an MRI ...ct scan at the hospital it was at before and MRI at the cancer center. i've been told the MRI alone can be around $10,000. The gastro doc doesn't take the 'non health insurance' i have (or the 'non health insurance' won't pay or whatever) so that is 100% out of pocket. i had to pay what i dind' tknow i had to pay previously plus whatever its going to cost when i go to see him next Tues...$500 if i'm right hopefully not more.
the good thing is that today i went and got my new ID so i can hopefully start some things rolling to see if i can get some help with these bills.
i keep wondering how much its going to wind up being..and if its worth havin to pay that to keep on my feet. a quarter of a million $ for this broken body? i don't think its worth it. never being able to leave this unhealthy dungeon i'm in? living with nothing to look forward to but dragging to work IF there's still work? i just can't see it happening.
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Re: the big c finally caught up with me

Post by Sue Short on Wed Oct 24, 2012 8:26 pm



Jeane, you are worth it.
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Re: the big c finally caught up with me

Post by fiffur on Thu Oct 25, 2012 12:31 pm

Yes you are worth it Jeane! If TRU doesn't appreciate you, somebody else surely will. If you can get disability, that's guaranteed income you can list to get a place elsewhere (even if it is HUD) so you won't be in that dungeon forever. Don't stress too much about the bills for all this treatment, there is help out there for that. And they can't get blood out of a turnip you know.

The world would be a dimmer place without you in it IMHO. So take care of you, please!
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